Life with a Rare Disease can be challenging to say the least. If you or a family member has been diagnosed with a Primary Immune Deficiency Disorder or ANY other Rare Disease, I sincerely hope that the tips, advice, news and updates from the worlds of Rare Disease, Immunology, Primary Immunodeficiency, Pharma, Orphan Drugs, Medicine, Clinical Trials, Stem Cells, Gene Therapy, Psychology, Self-Help and beyond which you find on this site will prove helpful, informative, educational, and beneficial in nature.

Welcome! My name is Yonatan Maisel. I am a rehabilitation psychologist, writer, blogger, and rare disease advocate. In 2005 I was diagnosed with Common Variable Immune Deficiency (CVID), one of the disorders classified as a Primary Immune Deficiency (PID) Disorder. In 2010, I was diagnosed with Sweet's Syndrome, another very rare disease. To date, I remain only the second case described in medical literature of having these two disorders simultaneously.
 
This website will present informational blog posts, videos, a weekly newsletter, and other items offering practical tips and advice on all which I have learned thus far during my journey into the world of Rare Disease.