It's one of the most DYNAMIC hashtag's on Twitter!
It represents the approximately 7,000 known Rare Diseases
It represents the tight-knit community comprised of millions of individuals worldwide affected by a Rare Disease
People Coping With Rare Disease Are Internet Power Users: It's not just hearsay; Rare Disease patients have been crowned by Pew Research as the kings and queens of online / social media presence - "Rare" Patients actively and proactively seek out relevant, accurate and up-to-date information, much of the time by means of Twitter's #RareDisease hashtag. Click the above link to check out the great article presented by NPR.
The #RareDisease hashtag, and the closely related '#RareDiseases' hashtag, are, daily, some of the most searched-out and shared medical/health-related hashtags on Twitter
The #RareDisease hashtag assists you in being found. Placed in your Twitter profile description, it puts you on the Twitter Rare Disease map, allowing you to be found by other patients, advocates and researchers
Consult the RARE List™ from Global Genes Project or the Rare Disease Database from the National Organization for Rare Disorders, both fantastic resources.
Research related to a Rare Disease or Rare Diseases
Rare Disease news
Relevant blog posts, videos and infographics
#orphandrug / #orphandrugs
#stemcell / #stemcells
#cancer - many cancers are, by virtue of their low incidence rates, Rare Diseases
#childhoodcancer - almost all childhood cancers are rare diseases
...and dozens and dozens more!
The #RareDisease hashtag can serve as an invaluable tool.
Whether you are a Rare Disease patient, advocate, researcher, or simply somebody with a post or article with Rare Disease relevancy, the hashtag allows you to connect.
It brings a heightened sense of visibility to your '140 characters or less.' It allows your post to be easily found, read, and shared. If your post has relevancy for the Rare Disease community and you're not using the hashtag, you're missing out!